May 1: First Outpatient Appointment
We saw Matthew’s Primary Care Physician today. We haven’t gone out with him other than bringing him home from the hospital because it’s just…Read More
Category: Uncategorized
April 27 Update: 91 Days in the Hospital
Weight: 3645 g (8 lbs .5 oz) After an unbelievably busy, overwhelming, and rather frustrating day, we finally made it home at 10:15 p.m.…Read More
April 26 Update: 3 Months Old!
Matthew has been in the hospital for 90 whole days. It’s been quite the adventure. This afternoon, he had his G-Tube surgery, and it…Read More
April 25 Update
Today we said goodbye to what has been Matthew’s home for the past 88 days…and what was my home for 2 weeks prior to…Read More
April 24 Update
Matthew will be transferred to Primary Children’s Hospital tomorrow morning. They finally had a bed open up. He will stay in the NICU. We…Read More
April 23 Update
Weight: 3510 g (7 lbs 12 oz) Feeding: 62 ml over 30 minutes every 3 hours Oxygen Flow: .8 liter/minute Matthew has struggled to…Read More
April 20/21 Update
Weight: 3465 g (7 lbs 10 oz) Oxygen Flow- .8% Matthew took 33% of his feeds orally today. The nurses see the same issues…Read More
April 19 Update
Weight: 3400 g (7 lbs 8 oz) This kiddo had a big day today with his swallow study, so he was completely out when…Read More
April 18 Update: 42 Weeks
Weight: 3310 g (7 lbs 4.75 oz) Matthew will have a swallow test done tomorrow to identify whether or not he has any abnormalities…Read More